Moving Mountains for Max
This is Max. Those of us who know him call him Mighty Max. He has been a fighter since long before his due date and now Max has his biggest challenge yet, the diagnosis of Spinal Muscular Atrophy type 2, a rare and debilitating disease. There are treatments available to slow the progression; however, the way to maximize length and quality of life is to seek Zolgensma - a gene therapy not approved or funded by Health Canada, a drug that must be administered before he reaches the age of two. The cost is $2.8 million CAD and it’s imperative we do everything we can to get Max this treatment.
Who could disagree?